Valley Forge Educational Services:
Free Internet Safety Workshop for Parents: join a cyber-security, cyber-bullying, social media expert to learn about the real hazards that exist beyond the streets. Workshop will be held at VFES Activity Center 1777 North Valley Rd., Malvern, PA 19355 on Thursday, March 9 from 7:00 p.m. - 8:30 p.m. Register here. Questions: email or call: 610-296-6725 ext. 116.
A Step Up Academy:
Surviving & Thriving Group: we help you rediscover your strengths, put a priority on self-care and parent from your best self. Group will be held at A Step Up 520 Meetinghouse Rd., Jenkintown, PA 19046 on Saturday, March 18, 10:00 a.m. - 11:30 a.m. For more information and registration click here or contact BethAnn.
Ruttenberg Autism Center (RAC):
free open forum for families of Individuals on the autism spectrum. Forum will be held at RAC 1740 Walton Rd., 1st Floor, Blue Bell, PA 19422 on Sunday, March 26 at 3:30 p.m. To learn more and to RSVP, click here or contact Mary.
Foundations Community Partnership presents Educational Workshops for Professionals: Co-Occurring Conditions in Youth with Autism Spectrum Disorder. Workshop offers Continuing Education Credits (CEUs) and are held at the Doylestown Health and Wellness Auditorium, 847 Easton Rd./Rt 611, Warrington, PA 18976 on Wednesday, March 1, 8:30 a. m. - 12:00 p.m. For more information and to register call 267-247-5584 or visit www.fcpartnership.org.
Bucks Life Office presents: Crisis Planning: a free parent and professional workshop. The presenter Mark Boorse, Director of Program Development with Access Services, will lead this interactive discussion regarding crisis planning at the Ivyland Office, 882 Jacksonville Rd., Ste 203, Ivyland, PA 18974 on Tuesday, March 21 from 10:00 a.m. - 12:00 p.m. Register here.
Special-Ed Services to get a Bump: Settlement to provide ESY for Philadelphia Students
From: www.philly.com by Kristen Graham
The Philadelphia School District has agreed to provide enhanced special education services over school breaks to students who qualify for them.
With Talk of Waiver Changes, Medicare Services May Be At Risk
From: www.disabilityscoop.com by Michelle Diament
The Trump administration is planning to fundamentally alter Medicaid, a move that could mean big changes to everything from health care to home and community-based services waivers for people with developmental disabilities.
Was Dr. Asperger a Nazi? The Question Still Haunts Autism
From: http://www.npr.org by Steve Silberman
The publication of a new history of autism called In a Different Key, by John Donovan and Caren Zucker, has reopened an unsettling question about the pioneering Viennese pediatrician Hans Asperger: was he a Nazi sympathizer, or a man who paid lip-service to his bosses' murderous ideology in order to save the lives of as many of his young patients as possible?
The Special-Education Charade: Individual Education Programs, or IEPs are one of the greatest pitfalls of our country's school system.
From: http://theatlantic.com by Tracy Thomson
I am in hell or its equivalent. Specifically, I am in an Individualized Education Program (IEP) meeting for my 14-year- old daughter, a special education student at Prince George's County, MD.
Is the Bar Too Low for Special Education?
From: http://theatlantic.com by Laura McKenna
The Supreme Court is poised to decide the quality of instruction public schools must provide students with disabilities- a question that could get even thornier under the Trump administration.
We are looking for people who are 18 years and older with developmental disabilities to complete a survey asking questions about transportation. Developmental disabilities: 1) start at birth or during childhood; 2) are expected to continue throughout the person’s life; and 3) impact the person’s ability to perform in major life activities. Examples of developmental disabilities include but are not limited to Autism, Behavioral Disorders, Cerebral Palsy, Down Syndrome, Intellectual Disability, and Spina Bifida.
We are trying learning about what transportation people with developmental disabilities use to get to activities in the community. We are also trying to learn about people’s experiences using public transportation (i.e., buses and trains) and what makes it hard or stops a person from using public transportation. We want to know how transportation impacts participation in life activities such as work, doctor’s appointments, shopping, social events, and any other activities important to the person. The findings of this survey will be used to identify transportation issues and help in the development of future transportation training programs.
Participants can have help from another person to complete the survey including reading and explaining the questions, or checking the answer box if needed. Proxies can also complete the survey for a person with a developmental disability. Proxies are people that know the person with a developmental disability who can answer the questions the way that they think the person would answer the questions. These people might include a parent, relative, caregiver, guardian, or support staff. The questions take about 10-20 minutes to complete.
If you or someone you know is interested in participating in the study, please click on the following link:
Please feel free to contact Dr. Beth Pfeiffer at email@example.com or (215) 707-4504 with any questions or if would like additional information about the study.
ADULTS WITH AUTISM QUALITY OF LIFE STUDY
Jewish Family and Children’s Service (JFCS), in collaboration with the A.J. Drexel Autism Institute, is developing a Quality of Life questionnaire for adults diagnosed with Autism Spectrum Disorder to improve assessing the needs of individuals in this population. We are currently seeking individuals interested to take the questionnaire and give us feedback about the survey. Individuals will receive a $20 gift card for their participation.
TO VOLUNTEER FOR THE STUDY:
TO PARTICIPATE IN THE STUDY PLEASE CONTACT:
Facing Puberty: Girls under 18 years old
Description:Nurse researchers at the University of Pennsylvania are conducting a study on the experience of puberty and periods for girls with and without ASD. Who can participate? Parents and their daughters under 18 years, with or without ASD; daughters must have had at least one period in the last six months. What will participants do? Complete a confidential online survey about daughter’s periods, physical activity, eating habits, and symptoms of anxiety. Parent surveys take ~30 minutes and daughter surveys take ~20 minutes; can be completed in more than one sitting. Selected parents and daughters with ASD will be invited for one 30-60 minute interview with the research team to further explore the experience of puberty. Parents and daughters will each receive a $10 e-gift card for completion of the online survey. Parents and daughters selected for interviews will each receive a $25 e-gift card upon completion of the interview.
Start/End Dates: 10/01/2015- 05/31/2016
Please contact Whitney Eriksen at firstname.lastname@example.org
Study 1: Play Intervention Study
University of Delaware’s Move To Learn (M2L) – Autism Lab is conducting a Play Intervention Study (PI: Anjana Bhat, PT, PhD). This study will examine the effects of play-based, dance interventions on motor and social skills of children with Autism Spectrum Disorder (ASD) between 5 and 14 years of age. Participating families receive $50 upon completion of all testing and the majority of training sessions. To volunteer, please call the M2L Lab at 1-302-831-7608 or email to email@example.com.
Study 2: Adult Needs Assessment Study
University of Delaware’s Move to Learn (M2L) - Autism Lab is conducting an Adult Needs Assessment Study (Investigators: Anjana Bhat, Brian Freedman, Annalisa Ekbladh, & Sudha Srinivasan). This study will examine the strengths and needs of adolescents and adults with Autism Spectrum Disorder between 13 and 50 years of age. You will receive $20 as payment for participation. You can help by volunteering for our study. Please call the M2L Lab at 1-302-831-7608 or email firstname.lastname@example.org.
UD’s Autism Lab fNIRS Study: Families can participate in a study examining brain activity in infants, children and adults with and without Autism Spectrum Disorder, 3 months to 50 years; when performing various play or functional skills. This study involves 3 visits to our lab in Newark, Delaware. fNIRS is completely safe and non-invasive. A cap with LED lights is placed on the participant’s head as he/she completes activities. Payment = $30 total. To volunteer, email email@example.com or call (302) 831-7608. Flyer.
Volunteers Needed for Research Study on:
The Experience of Single Parents of Adults with