April 2018

 

 

ASCEND Events 

Chips, Chocolate and Chat: ASCEND's Social Gathering for Adults on the Spectrum

This is a gathering of adults who may be interested in connecting with other self-advocates. While staff are available to help facilitate, participants will collectively guide the nature of the group and how they may like to see the group evolve from a gathering moving forward. Instead of becoming a therapeutic group, this group is intended to provide opportunities for connection and discussion among participants, possibly leading to additional activities based on common interests.

Sun., 4/8 from 4 - 5 PM
Ruttenberg Autism Center
1740 Walton Road, 1st Floor
Blue Bell, PA 19422
Attendance is free, but please RSVP to [email protected]

Discussion Group for Caregivers

This free group for parents/caregivers will be held in a different room but at the same time as the adult group session, Chips, Chocolate & Chat.

Sun., 4/8 from 4 - 5 PM
Ruttenberg Autism Center
1740 Walton Road, 1st Floor
Blue Bell, PA 19422
Attendance is free, but please RSVP to [email protected]

Autism Acceptance Calendar of Events


Highlight on an ASCEND Professional:

Camp Pegasus / Art of Friendship Social Skills

The Art of Friendship Social-Coping program and its sibling, Camp Pegasus, have been in constant development and evolution. In 2000, Mike Fogel was first introduced to - and became passionate about - treatment for children with Asperger's Syndrome (High Functioning Autism). To meet clients' unique needs, he integrated social skills lessons with group art therapy techniques, a unique reward system, real-time social coaching, and parent training.

Mike's vision is to develop a "social-coping skills community" of children, teens, educators, and parents. Neuro-diverse children and teens experience year-round opportunities to make meaningful friendships, learn new social-coping skills, overcome challenges, and gain confidence in their self-determination. Parents are a part of this social-coping community as well, through individual and group educational opportunities and support groups.

For more detailed information about the Art of Friendship and Camp Pegasus, click here.

To contact the Art of Friendship Social-Coping Program and Camp Pegasus, call (610) 649-1080, or email [email protected].  For additional information about the programs, please visit www.ArtOfFriendshipSocialSkills.com and www.CampPegasus.com.

Attention ASCEND Members:

One of the benefits of being an ASCEND member is the ability to access recordings of our recent informative sessions regarding employent and individuals on the autism spectrum:

Choosing the Right Job or Career: Tips for Individuals on the Spectrum and Their Parents

SAP: Autism at Work: The groundbreaking Autism at Work program

To view/listen to these recordings, login and click the Member Landing Page in the top right corner. If you have forgotten your username/password, please let us know.


In the Media

How Medicaid Became a Go-To Fundraiser for Schools
From https://www.disabilityscoop.com  by Anna Gorman and Carmen Heredia Rodriguez, Kaiser Health News 

OAKLAND, Calif. - Gerardo Alejandrez used to punch classmates, throw chairs and curse at his teachers, conduct that forced him to switch from school to school. "I had a lot of anger issues," the 16-year-old said recently.

Then Gerardo entered a class at Oakland Technical High School for students who have mental health or behavior issues. In that classroom, the teacher gets support from Erich Roberts, a psychiatric social worker assigned to the group. Oakland Unified School District bills Medicaid, the nation's insurance program for low-income residents, for Roberts' services.

Pilot Launched to Help Students with Intellectual Disabilities Attend College & Prepare for Employment

Getting accepted into college and having a "college experience" is a rite of passage for many young people in our society. A group that has traditionally not been able to have this experience is young adults with intellectual disabilities. While a typical college degree may be out of their reach for many, the ability to learn, interact, and engage in college experiences is not. The participation of individuals with intellectual disabilities in college programs can benefit not only those with a disability, but their same age peers who are in traditional degree-seeking programs. West Chester University is looking to provide that opportunity through The RAM (Real Achievement Matters) Initiative, a new pilot program that will begin to accept qualified students to start their college experience in Fall 2018. 

New research suggests that a type of therapy relying on computer-based exercises and small group sessions can yield big gains for adults with autism, potentially increasing employability.

The approach known as cognitive enhancement therapy helped those on the spectrum increase their attention and process information more quickly, according to findings. 

 

 

 

 

Research Studies

In the interest of promoting autism awareness, we feel it is important to help spread the word about autism spectrum research studies that are being conducted in our area. For the first time, we are giving individuals and organizations the opportunity to advertise their research studies in future ASCEND e-newsletters and on our website, for a nominal fee without first becoming ASCEND members. Use this Research Study Form to submit your study. 

 

Research Study Form
In the interest of promoting autism awareness, we feel it is important to help spread the word about autism spectrum research studies that are being conducted in our area. For the first time, we are giving individuals and organizations the opportunity to advertise their research studies in future ASCEND e-newsletters and on our website, for a nominal fee without first becoming ASCEND members. Use this Research Study Form to submit your study. 

Transportation Study 
We are looking for people who are 18 years and older with developmental disabilities to complete a survey asking questions about transportation. Developmental disabilities: 1) start at birth or during childhood; 2) are expected to continue throughout the person's life; and 3) impact the person's ability to perform in major life activities. Please click on above link for more information.

 

autismMatch  
Description: autismMatch is a research registry in which children and adults with or without ASD are asked to create a profile in order to be matched with currently enrolling research studies. The profile requests basic contact and background information. Participants will be contacted through email periodically when their profile matches the recruitment criteria for a new research study. 

Infant Brain Imaging Study (IBIS)
In an attempt to learn about patterns of brain development in children, we are studying the differences in brain patterns between children with autism spectrum disorders and typically developing children. Infants between 3-6 months of age with an older sibling who is diagnosed with an ASD are invited to participate. At the end of the study, you will receive an ASD diagnostic assessment and recommendations from our clinician. Families are compensated for time and travel. Please click on title link above for more information.

Research on Autism and Developmental Disorders (ROADD)
Because there is very little research about the early development of ASD in young children, this study will observe young children to learn more about the biological underpinnings of ASD. Children ages 3-5 with or without a diagnosis of ASD may be eligible to participate. A comprehensive evaluation and written feedback report with recommendations for treatment will be given. Families are compensated for time and travel. Please click on above title link for more information.

Early Autism Risk Longitudinal Investigation (EARLI)
This ground-breaking study is looking at possible environmental and genetic links to autism. Mothers who have a biological child with ASD or who less than 28 weeks pregnant and who live in the tristate area are being invited to participate in this study. Mothers will be asked to complete questionnaires, do phone interviews and provide biological samples through pregnancy, at delivery and afterward. Two study visits, one in the clinic with your child with ASD for behavioral and developmental assessments and one at home are required. You will receive autism assessments from clinicians and compensation. Please click on title link for more information.


JAKE App Study
With the use of new mobile app technology, this study aims to develop a mobile app-based system to monitor clinical outcomes in children and adults with ASD vs. typically developing children and adults. Children and adults ages 6 and older with or without ASD may take part. The total time commitment for the study varies depending whether you are typically developing or have ASD. Please click on above title link for more information.


Facing Puberty: Understanding Menses in Females with ASD
The purpose of this study is to understand the onset, symptoms, and experience of menses for girls with ASD compared to typically developing peers. Girls with and without ASD and one of their parents are being asked to participate. The girls and their parents will be asked to complete several online surveys about their menstrual cycle, level of activity, food preferences and intake, and symptoms of anxiety.

 

Research Study on the Childbirth Experience
Would you like the chance to talk about your experiences during birth? Autistic Women are being sought for a study focusing on the childbirth experience. Autistic Women with who have given birth within the past 10 years in an acute care setting such as a hospital and had no complications in themselves or with their baby are invited to participate. All participants will receive a $50.00 Amazon gift at the interview. For more information, please click on the title link above.

The successes and challenges of same-sex relationships for men with autism spectrum disorder (ASD)
Eligibility:  Adults (18+) with ASD who identify as male and who have had at least one same-sex intimate-partner relationship. Participants should have a professional diagnosis of ASD, as well as at least a High School Diploma/GED, or international equivalent. There is no geographic limitation.
Compensation:  Each participant who successfully completes the interview will receive a $10.00 gift card in appreciation from the Principal Investigator. Participants may also receive the results of the study. For more information please click on the title link above. 

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ASCEND Group Inc.
610-449-6776 
Email: [email protected]
www.ascendgroup.org

Legal Disclaimer: ASCEND maintains the Professional Services Resource Directory as a service to families and professionals as a reference tool. ASCEND does not endorse or claim to have personal knowledge of the abilities of those listed. The resources listed on this page are not intended as a recommendation, referral, or endorsement of any resource or as a tool for verifying the credentials, qualifications, or abilities of any organization, product or professional. Users are urged to use independent judgment when considering any resource associated with diagnosis or treatment of autism, or the provision of services related to autism.


ASCEND Group Inc. is a 501(c)(3) charitable organization. We do not endorse any specific professional or therapeutic treatment. We are not meant to be a replacement for medical or legal advice. Our mission is to raise public awareness about Asperger Syndrome and related disorders, to advocate for improved education and services, and to provide support and information to the Asperger and autism community. This web site is for informational purposes only. Any link or mention on our web site should not be construed as an endorsement or recommendation. If you have questions about Autism or Asperger Syndrome, please consult with a qualified medical professional.