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ASCEND Professional Directory
Thank you to ASCEND Board Member Rich Fry for raising $1,325.00 through Facebook! In lieu of birthday gifts this year Rich asked his friends and family to donate to the ASCEND Group. If you or someone you know would like to set up donations to ASCEND Group through Facebook, here are the steps:
Fundraisers for Nonprofits
To create a fundraiser for a charitable organization, click here or follow these steps:
- Click Fundraisers in the left menu of your News Feed.
- Click Raise Money.
- Select Nonprofit/Charity.
- Select ASCEND Group, choose a cover photo and fill in the fundraiser details.
- Click Create.
Calling All Volunteers!
Interested in volunteering? We welcome ASCEND members and non-members to sign up to volunteer on one of our committees. It's a great way to meet other people in our community and to give back! Please click here to sign up to volunteer.
Research Studies
In the interest of promoting autism awareness, we feel it is important to help spread the word about autism spectrum research studies that are being conducted in our area. For the first time, we are giving individuals and organizations the opportunity to advertise their research studies in future ASCEND e-newsletters and on our website, for a nominal fee without first becoming ASCEND members. Use this Research Study Form to submit your study.
The Experiences of Stigma, Stress, and Social Support Amongst Fathers of Children on the Autism Spectrum
Are you a father of a child or teenager (ages 5-18) with autism? Have you ever felt that people don't understand what your life is like and how you feel? Have you ever been rejected, judged, or embarrassed by friends, family, or even complete strangers because you are the father of an amazing and wonderful child with autism? Your experiences as a father of a child with autism are unique and important. As a parent, you are the only person who really knows what it's like to raise a child with autism. You have experienced the ups and downs, the laughter and tears, the joy and pain. We are inviting you to participate in a research study and share your experiences of stigma, stress, and social support. Your perspective will increase our understanding of what your life is like. You can help us know how it feels to be a father of a child with autism.
The entire survey should take approximately 20 minutes to complete. As a small token of appreciation for your participation, you may choose to be entered into a raffle for one of four Amazon Fire 7 tablets.
NEW: Suicide Prevention and Autism
You may qualify to participate if: - You are the family member of a teenager or adult with Autism Spectrum Disorder Participants will complete a 1-hour interview with a member of our research team. Participants will be compensated $30 for their time. Please call Dr. Shari Jager-Hyman at 215-746-3944.
SPARK for Autism
We are enrolling any individual with autism spectrum disorder and their biological parents into the nation’s largest autism study, called SPARK. The goal of SPARK is to speed up autism research and find the genetic causes of autism. All participants enroll online at www.sparkforautism.org/CHOP and then provide a saliva sample via kits that are mailed to the home. Families who return the saliva collection kits will receive compensation and access to free webinars and an interactive and informational dashboard. For more information: 267-426-4971 [email protected]
Police Safety Study
We are looking for teens and adults ages 12 and older with autism spectrum disorder to participate in a research study testing two different methods of helping people with ASD learn to interact with police officers. One method will use virtual reality (VR) and the other uses video modeling (VM). Participation in this study involves one to three visits to CAR for VR or VM intervention and complete questionnaires. Participants will be compensated for their time. For more information: Ashley Zitter [email protected]
Social and Motor Communication Study
The goal of this research study is to better understand differences in the way children with autism move their bodies and faces compared to children who are developing typically. Children who are diagnosed with ASD or who are typically developing are invited to participate in this study, which will include a visit to CAR to complete simple social skills tasks, motor behavior and language tasks as well as an IQ test. Participants will be compensated for their time and effort and will receive a brief report of their behavioral and IQ tests results. For more information: [email protected] | 267-425-1192
Orbiting- For Repetitive and Restrictive Behaviors
No two people with autism are the same. And of course we wouldn’t want them to be. We’re looking for children and adults with autism between the ages of 5 and 17 to join the oRBiting study. oRBiting will help us to better understand the different scales used to measure certain behaviors associated with autism. We’ll also ask what wearable technologies can tell us about autism. For more information: 267-425-1179 Jessica Tschida.
We are looking for adults with autism ages 18 and older to participate in a study looking at the impact of travel training on use of public transportation to access the community (i.e., social events, medical appointments, work).
Wandering Research Study
Researchers at Cohen Children’s Medical Center are conducting a new, national study about wandering in children with autism and other developmental disabilities. If you are the parent of a child who wanders, you may be eligible to participate. Participants will be asked to spend approximately 30 minutes completing an anonymous, online questionnaire about their child’s wandering behavior. To take the survey, click on this link. For more information, contact Bridget Kiely.
autismMatch is an online registry that can quickly and easily connect interested individuals and families with research opportunities to advance scientists' understanding of ASD and related disorders, such as ADHD, anxiety, 22q deletion syndrome, and others.
Infant Brain Imaging Study (IBIS)
In an attempt to learn about patterns of brain development in children, we are studying the differences in brain patterns between children with autism spectrum disorders and typically developing children. Infants between 3-6 months of age with an older sibling who is diagnosed with an ASD are invited to participate.
Research on Autism and Developmental Disorders (ROADD)
This study will observe young children to learn more about the biological underpinnings of ASD. Children ages 3-5 with or without a diagnosis of ASD may be eligible to participate.
Early Autism Risk Longitudinal Investigation (EARLI)
This ground-breaking study is looking at possible environmental and genetic links to autism. Mothers who have a biological child with ASD or who less than 28 weeks pregnant and who live in the tristate area are being invited to participate in this study.
JAKE App Study
With the use of new mobile app technology, this study aims to develop a mobile app-based system to monitor clinical outcomes in children and adults with ASD vs. typically developing children and adults. Children and adults ages 6 and older with or without ASD may take part.
Our Sponsors
Welcome to ASCEND Group
ASCEND's MISSION: To improve the lives of individualsand families in the Greater Philadelphia area impacted by Asperger Syndrome and Autism through connections, community and support.
A group of adult self-advocates who with the help of a facilitator, discuss topics chosen by the group. Topics that have been addressed include dating, co-workers, break-ups, meet-ups, interviewing for jobs, etc. In the past, we have had a few guest speakers who have addressed the group as well. Attendees: Adults on the autism spectrum, ages 18+
*Free ASCEND Game MeetUp for Tweens & Teens
Professional Events and Ongoing Groups:
Bryn Mawr Family Education Support Group plus a Peer Support Group: Your Dependent with Special Needs - Making his or her Future More Secure Presented by Jeffrey L. Slavich, ChSNC, Financial Advisor Topics will include:
Please see Jeff’s presentation on the “10 Basic Steps for Special Needs Caregivers”. Free and open to the community!
Research has shown that individuals with ASD can not only perform proficiently in the workplace, they can do so independently if the job matches their personal strengths and capabilities and specific job tasks are taught to mastery. The goal of this group is to not only develop participant proficiency in technology use, but to also teach key "soft-skills" such as; job searching, understanding workplace norms, routines and etiquette, social communication at work and workplace problem-solving skills. If interested, contact Reggie Candio at [email protected] Kristina Vacha, Clinical Social Work/Therapist, LCSW, LBS, MSS, MA I have two groups now meeting twice a month at my office in Media.
The first group is for adults on the spectrum both men and women who are fully employed or full time college students. We meet at my office and also have social outings in the community which the group members are helping to plan.. You must do both because the group is working on skills to plan the outings and then discusses how it went at the next meeting. There is an additional fee for group outings.
My second group which is now meeting every other Wednesday evening is for men with ASD, may be employed FT or PT, or between jobs, and struggling with social isolation.
The first step is to meet with me individually to determine fit for a group. The cost for that consultation is $50. The group fees right now are $40 private pay and $50 if you will submit to insurance.
I am a good listener and will give you time and space to share your concerns. I specialize in supporting transitioning teens and adults with ASD and parents/caretakers. I offer a comprehensive strengths-based approach that also utilizes evidence-based interventions to address issues related to anxiety and depression, life transitions, family and relationship dynamics, self-advocacy, work/employment, co-morbid mental health issues, healthy lifestyle, independent living, contact with law enforcement, and sexuality/dating. I work across the spectrum including nonverbal individuals to high functioning professionals.
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Kristina Vacha's GroupsCopyright ©2014 ASCEND Group, Inc. All rights reserved