Transportation Survey

We are looking for people who are 18 years and older with developmental disabilities to complete a survey asking questions about transportation. Developmental disabilities: 1) start at birth or during childhood; 2) are expected to continue throughout the person’s life; and 3) impact the person’s ability to perform in major life activities. Examples of developmental disabilities include but are not limited to Autism, Behavioral Disorders, Cerebral Palsy, Down Syndrome, Intellectual Disability, and Spina Bifida. 

We are trying learning about what transportation people with developmental disabilities use to get to activities in the community. We are also trying to learn about people’s experiences using public transportation (i.e., buses and trains) and what makes it hard or stops a person from using public transportation. We want to know how transportation impacts participation in life activities such as work, doctor’s appointments, shopping, social events, and any other activities important to the person. The findings of this survey will be used to identify transportation issues and help in the development of future transportation training programs.

Participants can have help from another person to complete the survey including reading and explaining the questions, or checking the answer box if needed. Proxies can also complete the survey for a person with a developmental disability. Proxies are people that know the person with a developmental disability who can answer the questions the way that they think the person would answer the questions. These people might include a parent, relative, caregiver, guardian, or support staff. The questions take about 10-20 minutes to complete. 

If you or someone you know is interested in participating in the study, please click on the following link:

Transportation Survey

Please feel free to contact Dr. Beth Pfeiffer at bpfeiffe@temple.edu or (215) 707-4504 with any questions or if would like additional information about the study.

Thank you!

 


 

ADULTS WITH AUTISM QUALITY OF LIFE STUDY

Jewish Family and Children’s Service (JFCS), in collaboration with the A.J. Drexel Autism Institute, is developing a Quality of Life questionnaire for adults diagnosed with Autism Spectrum Disorder to improve assessing the needs of individuals in this population. We are currently seeking individuals interested to take the questionnaire and give us feedback about the survey. Individuals will receive a $20 gift card for their participation.

TO VOLUNTEER FOR THE STUDY: 

  • Must be between 19 and 65 years of age
  • Have a primary diagnosis of Autism Spectrum Disorder or Asperger’s Syndrome
  • Comfortable being interviewed one-on-one with researcher
VOLUNTEERS WILL: 
  • Complete both a full and brief version of the survey
  • Engage in an interview-style questionnaire 
  • Dedicate approximately 2– 2 1/2 hours (this time may be split into two sessions to accommodate participants’ schedules)

TO PARTICIPATE IN THE STUDY PLEASE CONTACT:
Amal El-Nageh at 267-256-2259 or ael-nageh@jfcsphilly.org

TO VIEW FULL FLYER CLICK HERE.


Facing Puberty: Girls under 18 years old

 Description:Nurse researchers at the University of Pennsylvania are conducting a study on the experience of puberty and periods for girls with and without ASD. Who can participate? Parents and their daughters under 18 years, with or without ASD; daughters must have had at least one period in the last six months. What will participants do? Complete a confidential online survey about daughter’s periods, physical activity, eating habits, and symptoms of anxiety. Parent surveys take ~30 minutes and daughter surveys take ~20 minutes; can be completed in more than one sitting. Selected parents and daughters with ASD will be invited for one 30-60 minute interview with the research team to further explore the experience of puberty. Parents and daughters will each receive a $10 e-gift card for completion of the online survey. Parents and daughters selected for interviews will each receive a $25 e-gift card upon completion of the interview.

This study was approved by the Institutional Review Board at the University of Pennsylvania, Protocol # 822940.

 Start/End Dates:  10/01/2015- 05/31/2016

 Please contact Whitney Eriksen at weriksen@nursing.upenn.edu

Website
FLYER


 

 Center for Autism (CAR) Research Studies Flyer

 


University of Delaware’s Move to Learn (M2L) - Autism Lab

Study 1: Play Intervention Study
Attention Parents and Children!

University of Delaware’s Move To Learn (M2L) – Autism Lab is conducting a Play Intervention Study (PI: Anjana Bhat, PT, PhD). This study will examine the effects of play-based, dance interventions on motor and social skills of children with Autism Spectrum Disorder (ASD) between 5 and 14 years of age. Participating families receive $50 upon completion of all testing and the majority of training sessions. To volunteer, please call the M2L Lab at 1-302-831-7608 or email to abhat@udel.edu.
Flyer

Study 2: Adult Needs Assessment Study
Attention Adolescents, Adults, & Parents!

University of Delaware’s Move to Learn (M2L) - Autism Lab is conducting an Adult Needs Assessment Study (Investigators: Anjana Bhat, Brian Freedman, Annalisa Ekbladh, & Sudha Srinivasan). This study will examine the strengths and needs of adolescents and adults with Autism Spectrum Disorder between 13 and 50 years of age. You will receive $20 as payment for participation. You can help by volunteering for our study.  Please call the M2L Lab at 1-302-831-7608 or email abhat@udel.edu.
Flyer

 

UD’s Autism Lab fNIRS Study: Families can participate in a study examining brain activity in infants, children and adults with and without Autism Spectrum Disorder, 3 months to 50 years; when performing various play or functional skills. This study involves 3 visits to our lab in Newark, Delaware. fNIRS is completely safe and non-invasive. A cap with LED lights is placed on the participant’s head as he/she completes activities. Payment = $30 total. To volunteer, email abhat@udel.edu or call (302) 831-7608. Flyer.


 

Volunteers Needed for Research Study on:

The Experience of Single Parents of Adults with
Autism Spectrum Disorder

 

WHO:  Participant Criteria:

1.       Parent of a child on the spectrum

2.       Child is 21-years-old or above

3.       Parent lives in the home with no other adult (friend, romantic partner, family member, etc.)

4.       Child was diagnosed with ASD, autism disorder, Asperger’s, or PDD-NOS by a licensed professional

5.       Available for a single interview lasting approximately 1 hour.

 6.      Participants will not be excluded based on race, gender, socioeconomic status, or ethnic origin.

WHERE: If possible, researcher will meet you at the location of your choice.

BENEFIT: To help deepen the understanding of the experience of single parents of adult children with ASD

COMPENSATION: Entry into raffle for a 50-dollar American Express gift card

CONTACT: Bryan Peightal, M.S. at BPeightal1@gmail.com or 215-485-0423


 

Research Study on the Childbirth Experience

Would you like the chance to talk about your experiences during birth?  Autistic Women are being sought for a study focusing on the childbirth experience.   Autistic Women with who have given birth within the past 10 years in an acute care setting such as a hospital and had no complications in themselves or with their baby are invited to participate. 

To be considered for the study you must be able to read and speak English and be willing and able to answer questions in an interview.

This is a study has been approved for solicitation of participants by Institutional Review Board at Widener University.  The researcher is a doctoral nursing student.

The study’s title is: The Experiences of Autistic Women During Childbirth in the Acute Care Setting.

You will be interviewed about your childbirth experience in a convenient place and time for you.  You may also choose to be interviewed over the phone.  The interview will last about 1 hour. 

There is a slight risk of experiencing some anxiety during the interview and the potential loss of privacy during the interview.  To decrease these risks, the researcher will interview you in a private location and keep all records of the interview private.  You may also bring someone to the interview if you wish.

All participants will receive a $50.00 Amazon gift at the interview

Please consider participating.  This is an opportunity to share your childbirth experiences to help nurses better understand the needs of women with autism spectrum disorder.

If interested, please contact: Jane Donovan, MSN, RNC-MNN  
Phone: 610-609-9967
Email jane.donovan83@gmail.com