This compilation of resources is for educational purposes.
Please note that listing does not imply endorsement.
To recommend a resource for this page, please write to info@ascendgroup.org.
ASPERGER & AUTISM SITES/LISTSERVS
ASCEND'S SPOUSES & PARTNERS YAHOO GROUP
Group moderator:Tina Caterino (610-994-5760)
In this online community-based support group for spouses and partners of individuals with Asperger Syndrome or related diagnoses, members help each other come to terms with AS and the impact on their marriage and family through education, understanding, validation and emotional support. Interactions take place within a context of learning, healing and exploring creative solutions to real time issues. Our intention is to ultimately enhance the quality of life for the family as a whole.
We are a support chapter within ASCEND Group serving families who are dealing with the Autistic Spectrum in the Greater Philadelphia region. Many of our "spouse/partner" group members are from this area and meet in person from time to time. However, membership currently includes and is open to those nationally and internationally. One's spouse or partner does not need to have had a professional diagnosis in order for you to join the group.
NATIONAL/INTERNATIONAL ASPERGER & AUTISM SITES
About: Autism Spectrum Disorders (About.com site - hosted by ASCEND member Lisa Jo Rudy)
Online Asperger Syndrome Information and Support (OASIS)
MAAP Services for Autism and Asperger Syndrome
First Signs (PA resources page)
Gray Center for Social Learning and Understanding
Aspies for Freedom (AFF)
Autism Society of America (ASA)
Autism National Committee
Tony Attwood's Homepage
Kids Health (AS info) Neurodiversity.com
Asperger Syndrome Information (put together by a Maryland mom)
AutismPodcast
NPR Broadcast "All Things Considered" with GRASP founder Michael John Carley
New Horizions For Learning
Penn State University 2006 National Autism Conference (Session Handouts)
ASPEN Asperger Syndrome Education and Support (NJ)
REGIONAL ASPERGER & AUTISM SITES
Chester County ASD Support Group
Asperger's Friends (For Young Adults with AS; Central NJ)
Autism Society of America, Greater Philadelphia Chapter
Sharing and Caring of Bucks County
AS Harmony
ADULT RESOURCES
Penn Autism Network
Global and Regional Asperger Syndrome Partnership
(GRASP--
see for Philly chapter)
Accepting Asperger's Syndrome (website developed by an adult with AS)
REGIONAL SUMMER PROGRAMS FOR CHILDREN WITH ASD
Camp Concepts - Expressions At George School
Camp Outlook - Ambler Area YMCA
Acting Antics Summer Camp Programs
Camp Wonderland - Little Wonders Child Growth & Development Center
PUBLISHERS OF ASPERGER/AUTISM BOOKS
Autism Asperger Publishing Company
Future Horizons
Jessica Kingsley Publishers
AUTISM RESEARCH INSTITUTIONS
University of Pittsburgh Autism Research Center Yale Child Study Center Developmental Disabilities Clinic
National Institute of Mental Health-Autism
OTHER SITES (not specific to Asperger/Autism)
National Association For The Dually Diagnosed
Sibling Support Project
Discovery Toys - Partners with Autism Speaks
Sensory Resources LLC
Uniquely Gifted - Resources for Gifted Children with Special Need
National Dissemination Center for Children with Disabilities (NICHCY)
Schwab Learning - A Parents' Guide to Helping Kids With LD (with link to SparkTop.org for kids)
MISCELLANEOUS PA & REGIONAL RESOURCES
Pennsylvania Department of Public Welfare
Pennsylvania Developmental Disabilities Council
Pennsylvania Office of Mental Health
Pennsylvania Office of Social Programs
Pennsylvania Office of Vocational Rehabilitation
Pennsylvania Training and Technical Assistance Network
Pennsylvania Parents and Caregivers Resource Network
Parents Involved Network of Pennsylvania
Parent to Parent of Pennsylvania
Parent Education Network
LDInfo
Pennsylvania Yellow Pages for Kids With Disabilities
AutismLink
PA Health Law Project - Understanding "Wraparound" Services For Children
Variety Family Resource Center
Potential, Inc. - Dedicated to Quality Services for children with Autism
Growth Opportunity Center - Child, Adolescent and Family Services
Connect Information Service 1-800-692-7288
A statewide, telephone helpline provides parents, educators and professionals with information on early intervention, special education, child development and family/social concerns.
Special Education Consult Line 1-800-879-2301
A service of the PDE; help for families and advocates of children with special needs about school-related concerns, special education regulations, and the complaint system.
EDUCATION & SCHOOL RESOURCES
NATIONAL/INTERNATIONAL EDUCATION & SCHOOL SITES
Best-Evidence Encyclopedia (from the Center for Data-Driven Reform In Education)
Association for Supervision & Curriculum Development
Council for Exceptional Children
Do2Learn
Responsive Classroom
Division TEACCH (University of North Carolina)
The School Report
Council for Exceptional Children
IDEA Partnership
REGIONAL/STATE EDUCATION & SCHOOL SITES
Pennsylvania Department of Education
PA Department of Education (School Report Cards)
PA Association for Supervision & Curriculum Development
PA Training and Technical Assistance Network's (PATTAN)
Basic Education Circulars
TransitionMap
PARENT ADVOCACY & LEGAL RESOURCES
WEBSITES
CADRE, The National Center on Dispute Resolution
Reed Martin Special Education Law & Advocacy
Wrightslaw Special Education Law & Advocacy
Education Law Center & The School Reform Network
Cap4Kids - The Children's Advocacy Project
ARTICLES & SPECIFIC LINKS
AS In Women: A Different Set of Challenges?
AS & Pursuing Eligibility for Services: The Case of the "Perfect Misplacement" by Ami Klin
Current Interventions in Autism: A Brief Analysis by Polly A. Yarnall, M.Ed.
Building a Better Homework System by Liane Holliday-Willey
Educating Children with Autism
AS-Educational Management Issues
"My Life With Autism: Implications for Educators" by Stephen Shore
The IEP: Writing an Individualized Educational Program
"Play Hearts, Not Poker" By Jennifer L. Bollero, Esq.
Resource Manual for Families and Advocates of Children with Special Needs (from the ARC of Chester County)
"Students with Disabilities Preparing for Postsecondary Education:
Know Your Rights and Responsibilities" US Dept. of Education, Office of Civil Rights
Extended School Year Links
http://www.elc-pa.org/ESY.11-02.1.16.03pdf.pdf
http://www.wrightslaw.com/info/esy.index.htm
http://www.indiana.edu/~eric_rec/ieo/bibs/extschyr.html
http://www.pde.state.pa.us/k12/cwp/view.asp?A=11&Q=67441
http://www.ppmd.org/publications/extended_school_year.html
http://www.pacode.com/secure/data/022/chapter14/s14.132.html
http://www.ideapractices.org/law/regulations/searchregs/300subpartC/Csec300
Right to Education Task Forces
State and Local Task Forces work with families of special needs children. Each Task Force includes parents and professionals who can offer assistance to families with questions about services. The Task Force exists to help families and school districts work together to ensure the integrity and delivery of special education services to eligible students.
Bucks County Right to Education Task Force
1-800-770-4822 ext. 2139
Chester County Right to Education Task Force
610-524-5048
Delaware County Local Right to Education Task Force
delcotaskforce@prodigy.net
Montgomery County Right to Education Task Force
610-539-8550, ext. 112
PARTICIPATE IN LOCAL ASPERGER/AUTISM RESEARCH
Penn School of Nursing Transitioning to Community by Adolescents/Young Adults with AS
This research is a joint effort between the Center for Autism and the UPenn School of Nursing. The purpose is to describe practical strategies to improve transitioning to independent living among adolescents with Asperger Syndrome. Adolescents and young adults with AS, aged 18-26 years, along with a parent, will participate in an interview and complete a survey.
Participants will receive a $50 gift card for their time.
Contact: Ellen Giarelli, EdD, RN, CRNP, Giarelli@nursing.upenn.edu, 215-746-0041 or Andrea Segal, ansegal@nursing.upenn.edu, 215-898-5519
THE CENTER FOR AUTISM RESEARCH AT
THE CHILDREN'S HOSPITAL OF PHILADELPHIA
Do you have a child diagnosed with autism spectrum disorder who has a
younger infant sibling?
The Infant Brain Imaging Study (IBIS) at the Center for Autism Research,
The Children's Hospital of Philadelphia is looking for participants!
Twin and family studies have shown that younger brothers and sisters of
children with autism are at a higher risk of developing autism than
those children who do not have relatives with this condition.
Information gained about early brain development in children with autism
may improve methods of early detection and intervention for infants who
may be at risk for developing autism. Earlier identification and
treatment may lead to better outcomes for these young children and their
families.
At the Center for Autism Research, The Children's Hospital of
Philadelphia, we aim to identify very early brain features that may be
characteristic of infants at risk for autism. To do this, we are
actively seeking to enroll families who have a child with an autism
spectrum disorder and an infant sibling 6 months old or younger for the
Infant Brain Imaging Study (IBIS). Developmental evaluations and MRI
scans of your infant's brain will be completed at 6, 12, and 24 months
of age. Compensation for participation is also provided, and travel
arrangements can be made for families traveling from further distances.
To learn more about participating in this study, please contact our
study coordinator, Deb Dunn, at 1-866-570-6524 (toll free) or
autism@email.chop.edu.
To submit information, please email us!
